I am humbled, inspired and amazed by what these two have endured over the last six weeks and how graciously, peacefully and faithfully they are handling it all. In just the two days that my sister and I spent in the hospital we got a good dose of the reality they are facing each day...it is big, tiring, challenging and hard to imagine how they are making it through...but somehow, by the grace of God, they are...
Here is Dani's report from last night...
- So last night her ascitis (stretched belly) was definetely getting worse (she's in size 3 diapers due to her belly). Around 11 p.m. her oxygen level went from 100 down to 85. It came back to shortly after that and has been hovering around 95-97. However, the nurse had to report that dip though to the doc who then ordered a chest.xray to rule out pneumonia or collapsing lung, etc.Cliff and I thought that was overkill and grumbled about them being ridiculous with tests and how she needed her rest. So chest xray came to the room and did their thing in the room. More blood was taken for more tests (17ml today-one over her limit and that's with giving back the waste blood)After all of this I was not happy and a bit more worried about Cordelia so we prayed for protection over her and guidance for the doctor.5 a.m. rolls around and the nurse comes in.. They stopped her iv nutrition. She had somehow wiggled her pic line out a bit and it was no longer centrally located where it was supposed to be... Score one for God's sovereignty. Had she not had the breathing problem and chest xray they wouldn't have looked at her pic line until her next dressing change Tuesday. The iv nutrition could have damaged her peripheral veins. We were again humbled and reminded how great and merciful God is. His ways are beyond our comprehension. Prayer is still our greatest need in thisseason of our lives.
Cordelia's Monday schedule:
12a chest xray
4a blood test
9a nuclear test
930a xray
1030a ekg
12p blood test
130p iv
2p belly tap
4p blood test
And then maybe a nap
Please continue to pray and mark your calendars for the September 30th Benefit!
She is an AMAZING little girl she is just so precious I instantlly have fallen for her. She will be in our prayers I hope she can get what she needs. God is good!
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